My hospital experiences 2016-2018
This webpage is an open and honest review of the many abusive experiences I had at University Hospital Coventry and Warwickshire.
During 2018, as well as 2016, my experiences of the hospital have been awful and disgraceful and need to be explained in a public setting.
Real activism includes raising public awareness and I urge every reader of this page to share the page as widely as possible.
Removing my gallstones
The whole purpose of the page is to assist in removing my extremely painful gallstones as quickly as possible in a duly selfish act.
These gallstones could have been removed over 2 years ago but the consultant said not to bother.
In July (2018) I fell out of bed, I one-off event as I misjudged a few things, and I dislodged my gallstone.
I knew straight away something bad had happened and I called an ambulance, who sent me to the hospital, without my wheelchair.
The hospital did indeed confirm it was my gallstones, but it was not a 'priority'.
Because I asked for pain relief as an expert patient they assumed I was morphine addict and after a 'fix', they sent me home!
There are times in life you need to be truly selfish for your physical and emotional wellbeing, and this is one of those times.
Nappy change in a hospital cupboard
During the same as the event above, in July 2018, I experienced a nappy (my preferred term) change in a hospital change.
I do not wear nappies all the time and when I do, it is when I go out.
When the ambulance came and after the normal tests, after they agreed to take me to the hospital, one of the paramedics, who was male, helped me get dressed.
He spotted I had a stack of disposable adult nappies and asked if I wanted to put him to one on me as he explained I would be waiting a long time. I agreed but it was a surreal experience.
It is important to understand despite it being unlawful since 1995, West Midlands Ambulance Service officially refuses to take wheelchairs in their vehicles.
This means I am stuck in the hospital on a trolley or crap hospital bed, making me by default functionally double incontinent.
Having arrived at 5 am, by the afternoon I clearly had a wet nappy and needed changing, as well as a urine bottle.
It is important to know I was in Accident and Emergency department and there were people on trolleys absolutely everywhere you could look. We were being moved around like cattle as it looked like a scene from a disaster film. And nurses confirmed that this was a 'normal day'.
So to save my dignity, they decided to change my nappy in a cupboard! I could have handled it if they were sensitive about the matter but they instead with glee they said 'Welcome to your toilet'.
This is the moment I knew the whole world was fucked and it was time to look after myself and just enjoy life.
Since this point, I have given up politics and become myself.
Being shouting at night by nurses
The hospital is not a single unit but rather a large collection of small businesses with their own culture and norms.
We are not just talking each ward but rather each shift. So as a patient with complex needs, I have to retrain them on my needs during each shift.
The night shift has always been the worst.
I do not sleep well and my oxygen levels are often better in a sitting position. So I am mostly awake at night tossing and turning.
Night nurses are rarely as nice as day nurses because they have no one 'important' watching them, so they can verbally, emotionally and probably physically abuse their patients without any consequences.
Because they assume most patients are vulnerable, they assume they can shout and bully us as much as they like.
They do not realise I am the ultimate undercover boss as in their eyes they assume I have learning difficulties. I never reveal myself at that time as complaining to them only puts you in more danger.
I cope by knowing I am mentally recording the incident and the people responsible for creating the culture of abuse will have the eventually be held accountable.
Just shit your pad
During one time in hospital during 2018, I was given an enema in the middle of the night.
Now, when a hospital as posh expensive videos playing in their reception area stating how they work towards excellence, and value the dignity of patients in the care of their patients, you will think the nursing staff would help me to the toilet as I am fully aware of when I need to go?
No, I had two nurses who nastily told me as I had a 'pad' on since this hospital does not provide proper nappies, I should use it to shit myself.
A wet nappy, which I often experienced due to functional mobility issues, is nothing to write home about, and much safer than being catherised.
But a messy nappy is not only not nice and something nobody likes, but it is also unhealthy as it can cause skin problems.
Anyone who has the ability to go the toilet should have that ability to do so as a basic human right.
Even if someone needs to wear nappies 24/7, they need the opportunity, at scheduled times if communication is a problem for them, to sit on the toilet. It may not always be successful but it is the effort that counts.
28 hours without normal pain relief
During my first stay in hospital in 2018, when I was physically detoxed from alcohol without the emotional support to maintain it, they did not provide me with my normal painkillers and other medication for 28 hours.
When I entered the hospital I continuously explained about the medication I was on as I moved from ward to ward.
During the first night, which was hell, I begged for pain relief to no avail.
In the morning, I was in so much pain I wanted to die.
I must have given a nurse a serious look, a look that says this is serious, as suddenly everyone ran around sorting out my medication.
Going to a hospital with complex needs, which I am somehow ended having, is not easy.
I will only talk to your carer!
Here we have the icing on the cake.
The last stay in hospital in 2018 drove me insane, and I mean cuckoo. They completely mismanaged my alcohol dependency and within 2 days I was wrecked and I could not even picture what my home looked like.
After having the worse dream of my life, where I dreamt I died and was reborn trapped in a hospital, as soon as my personal assistant arrived, I ran away without a word.
That afternoon, when I was back safely at home, we had a phone call from someone from the ward I was on.
I started answering the call as what is normal when some rings you. She immediately barked 'I am not talking to you, I will only talk to your CARER!'
Since then explained on handsfree, so we both listening, I was expected to attend an x-ray on my chest to tell me I aspirated which I already knew since 2004, and ORDERED my CARER to take me back to hospital!
Clearly, this did not happen!
I am rather proud to say the call ended with me screaming at her in frustration!
Am I angry? God, right I am!
The chief executive of NHS England is also called Simon Stevens. We met when he started the role but I doubt he will want to me again as I believed he has turned the NHS into a mess!
This page is real pure activism. People need to know what goes on behind closed doors in hospitals.
I hope you found this page useful and more importantly, it has made you angry!